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One of our organization’s goals is to facilitate research for cerebral palsy, hemiplegia and pediatric stroke. The research study opportunities listed are being conducted locally in Illinois and surrounding states, or can be accessed without travel. The success of these research studies depends on the generous donation of time by families affected by cerebral palsy and pediatric stroke. We hope you will consider these studies and take advantage of the opportunities to make a difference for your children and children in the future. If you are conducting a local research study and would like to be included on this list, please send your information to info@cshconnections.org.
The Cerebral Palsy Research Registry Representatives
from Northwestern University Department of Physical Therapy and Human
Movement Sciences, the Rehabilitation Institute of Chicago, and the
University of Chicago have developed and expanded the CPRR with two
goals in mind: 2. Use the CPRR as a tool to investigate surveillance data. Examples of this include the natural aging process of persons with cerebral palsy, current interventions, environmental modifications and services utilized by persons with cerebral palsy. Initially enrolling children and adults with cerebral palsy in the Chicagoland area, the Cerebral Palsy Research Registry has been expanded to accommodate national participant registration as well as additional participating institution collaboration. For more information, please
visit their website
or contact the CPRR Coordinator, Donna
Hurley.
Have you ever wondered how children learn language? Do all children learn language in the same way? How do children communicate before they speak? Your family can help us answer these questions and many more by being a part of the Language Development Project. We are currently seeking families with children between the ages of 14 and 58 months to participate in our study. Specifically, we are looking for children with unilateral brain injury that live within a 100 mile radius of the Chicago area. In order to help us understand how children learn and use language, we will visit children in their homes three times per year for approximately two hours at each visit. Families will receive $50 per home visit for participating in the study. If children are in daycare or preschool, we will also visit them there one time per year. If you are interested in finding out about the Language Development
Project, please contact Dr. Susan Levine at the University of Chicago by phone at (773)834-9914 or by email
at language@listhost.uchicago.edu Cerebral
Palsy Research at Northwestern University (Study 2) Contact Kristin Krosschell, PT, MA PCS at 312-908-6790 or email k-krosschell@northwestern.edu for more information. Communication/Speech
Study This study requires one visit to the University of Chicago for a 45 to 60 minute session. We are looking for about 5 participants with a history of stroke or focal brain injury, who are between the ages of 5 and 10 years. Specifically we are looking for children who suffered a stroke before or around the time of birth. The children will be shown videotaped scenes of actors and will be asked questions about what happens in the scenes. Participants will receive $10 for their participation. If interested in learning more or participating in this study, please contact Ece Demir at ece@uchicago.edu or 773-834-7573. Top
Children 0 to 18 years of age who: 1) have had an ischemic stroke after January 1, 2003; 2) have a history of spastic hemiplegic or quadriplegic cerebral palsy and X-ray evidence of ischemic stroke after January 1, 2003; or 3) are diagnosed with ischemic stroke defined by a new focal neurologic deficit lasting 24 hours or more and presumed due to vessel obstruction or narrowing may be eligible to participate this study. Participating children have their medical and research records reviewed for information about their stroke. The information is gathered and entered into an internet database. Parents may be interviewed to obtain additional information, if needed. No identifying information is entered into the database, so that the child's participation remains anonymous. The resulting registry may allow physicians to better diagnose, treat, and prevent stroke in children, and will help in developing and conducting new clinical trials to study this disease. Please refer to this study by
ClinicalTrials.gov identifier NCT00084292
Children with Porencephaly,
Stroke, and Cerebral Palsy Sought for Study Eligible patients must be less than 15 years of age with a history of porencephaly, cerebral infarction (stroke), and/or cerebral palsy and have a diagnosis of porencephaly or stroke confirmed by computed tomography (CT), magnetic resonance imaging (MRI), and/or Doppler ultrasonography. The study consists of a 30-minute telephone interview/questionnaire and a blood sample, and will be conducted at the National Institutes of Health (NIH) Clinical Center in Bethesda, MD. All study-related expenses will be paid by the NIH. The study will be carried out under testing and safety standards of the U.S. Department of Health and Human Services. For more information, physicians should send a referral letter and a copy of the patient's recent medical records to Dr. Karin Nelson or Dr. John Lynch, NINDS, NIH, 10 Center Drive, Building 10, Room 5S220, Bethesda, MD 20892-1447; telephone: (301) 496-1714; fax: (301) 496-2358; email: lynchj@ninds.nih.gov
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Copyright © 2006
Childhood Stroke and Hemiplegia Connections of Illinois.
All Rights Reserved.
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