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WELCOME
TO CHILDHOOD STROKE & HEMIPLEGIA CONNECTIONS OF ILLINOIS
CSHC is a not-for-profit 501(c)(3) organization dedicated to improving
the quality of life for children who survived a stroke and/or who have
symptoms of hemiplegia or hemiparesis from any cause.
We exist to increase awareness about pediatric stroke and
hemiplegic cerebral palsy and to provide education, resources,
recreation, and access to research for families affected by these
disorders.
CSHC began in 2002 as
an information and support group for families local to the Chicago
metropolitan area. We have grown into a recognized U.S. authority on children
with stroke and/or hemiplegia, forming connections with the U.K., the
American Heart Association/American Stroke Association, and the National
Stroke Association to further our mission.
Now, families from other states regularly attend our monthly
meetings as we continue to uniquely serve these children by providing
the only opportunity nationwide for their families to connect –
in-person and on-going – with other families, medical professionals,
research scientists, and the larger community of resources.
To find out
more about us and what we can offer you, please visit our About
CSHC page.
Please see our Donation page
to find out how you can help support our
mission of education, awareness, advocacy and research.
NEW!!!
FAMILY GUIDE TO
PEDIATRIC STROKE
A big
thank you to the Canadian
Stroke Network for creating a comprehensive guide for families with
young stroke survivors. A
Family Guide to Pediatric Stroke is Canadian based but the
information is universal. If you would like a complimentary
printed copy, please contact Dr. Patty Lindsay at patty@canadianstrokenetwork.ca
RECRUITMENT
FOR RESEARCH STUDIES
NIH
RESEARCH STUDY AT NORTHWESTERN UNIVERSITY
A study in
the upper extremity looking at the ability to perform a task. To
qualify, the participant must be between the ages of 8 and 35, who had a
stroke/other injury between the ages of 6 months and 10 years that
resulted in hemiparesis. The study involves one visit to their lab
at Northwestern in Chicago for 2 - 3 hours. Compensation and
parking provided. Contact Theresa Sukal Moulton at 312-503-1653 or
tsmoulton@u.northwestern.edu
RESEARCH
STUDY AT REHABILITATION INSTITUTE OF CHICAGO
Dr. Citlali
Lopez-Ortiz at RIC is currently testing the effects of children with CP
learning to dance. They are looking for participants who live in
the Chicagoland area. To be eligible, children must have a
diagnosis of CP and are now between the ages of 8 and 12. Must be
able to stand without assistance. Please contact Jenny at jenniferwarnick2013@u.northwestern.edu
or 847-736-7041 to register or for questions. More information can
be found on the RIC
flyer or general
flyer.
THE UNIVERSITY OF
CHICAGO RESEARCH STUDY
The U of
Chicago is currently recruiting participants for an fMRI study on
language. To qualify, the child must be between 7 - 10 years old
and have a unilateral brain lesion caused by a pre- or perinatal brain
injury. This is a 3 year study, with compensation of a minimum of
$100 per each of the 3 annual sessions. For more info visit:
www.mybrainrocks.org
or contact Virgina Li at fmri.language.study@gmail.com
PEDIATRIC HEMIPARESIS
STUDY IN MINNEAPOLIS, MN
The University of Minnesota
and Gillette Children's Specialty Healthcare have teamed to create a new
pediatric research study in hemiparesis. The purpose of the study is to
determine whether transcranial magnetic brain stimulation (TMS) combined
with constraint-induced therapy (CIT) results in improved hand control
and whether it produces new areas of activity in the brain.
To be eligible, participants should be
between the ages of 8-16, have weakness on one side of their body, be
able to move the paretic hand partially, walk short distances, have no
indwelling metal and have had no seizures within the last two years. The
study is being conducted in Minneapolis, Minnesota.
For more information please visit their website
or contact Maureen
Boxrud.
ONGOING
RECRUITMENT FOR THE CEREBRAL PALSY RESEARCH REGISTRY
The Cerebral
Palsy Research Registry has expanded to nationwide recruiting and online
registration. Please visit their website
or contact the CPRR Coordinator, Donna
Hurley to register your child.
More
research study opportunities can be found on our Research
page. Many of them do not involve travel, so you don't have to
live in the Chicago area to participate.
PEDIATRIC STROKE
VIDEOS
To view
Brady's story, click here.
To view
Brendan's story, click here.
Please note, the group "Strokes for Strokes" is in the
Philadelphia, PA area. Please visit their website, www.strokesforstrokes.org
for more information.
Here's an easy way to
raise money for our organization. Just start using GoodSearch.com as
your search engine. Every time you search, they make a donation to
Childhood Stroke & Hemiplegia Connections and it's powered by Yahoo!
so you get great search results! Just click on the link below to
get started.
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