|
Childhood
Stroke & Hemiplegia Connections of Illinois Media Kit
We are continuing our goal of increasing awareness
about childhood stroke and hemiplegia in the community, throughout
Illinois and nationwide. Our media kit includes press
releases, family
stories, treatment,
and articles
from various news sources.
American Heart Association's
Pediatric
Stroke Fact Sheet
On
July 1, 2009, the American Heart/American Stroke Association released a
pediatric stroke fact and policy sheet for the youngest survivors of
stroke. Click here
to view the information.
American Heart Association's Guidelines for Pediatric Stroke
These guidelines
were released in July 2008. ABC news came out with an article
detailing some of the highlights from the guidelines and declaring
"Kids Can Have Strokes Too".
Brendon's
Smile
Brendon's
Smile is a non-profit organization whose core purpose is to raise
awareness for Childhood (Pediatric) Stroke, to inform readers of the
signs/symptoms of stroke in infants and children, to educate caregivers
about advocating for child SURVIVORS of stroke, and to share resources
which support the young victims of stroke.
Can
Kids Have Strokes? Yes!
Here are posters the American Heart Association created to
promote childhood stroke awareness. Alex
and Amanda, Avery,
Luc,
Michelle
and Sean.
Lobby
Day with the American Heart Association
2009
Pediatric
stroke had representatives from 7 states this year's American
Heart/American Stroke Association Lobby Day.
On April 20 and 21, 2009 approximately 450 volunteers were in
Washington, DC to advocate for
increased funding for heart disease and stroke research and prevention
efforts as well as asking for meaningful healthcare reform.
Creating awareness on the Hill for pediatric stroke this year
were: Jessica S. from St. Louis, Sarah E. from Wisconsin, Erin G.
from Illinois, Melanie D. from Michigan, Emily B. from California, Emily
H. from Pennsylvania and Amber B. and Michelle B. from Georgia. As
a young stroke survivor who has been very vocal about childhood stroke,
Michelle B. was awarded the Youth Advocate of the Year for
2009. Congratulations Michelle and thank you to everyone that made
their voices heard in Congress. Click here
for a video that helps explain the energy and passion that brings
volunteers back to Lobby Day year after year. You can get involved
too, by going to the link for You're the Cure below.
2008
Two
families from our group went to Washington, D.C. with the American
Heart Association on April 28 and 29, 2008 for Lobby Day. This
was a wonderful opportunity to not only let Congress know that stroke
happens to kids, but to get the word out nationwide to the 700
volunteers who attended Lobby Day. Let's see how many pediatric
stroke survivors we can get to Lobby Day for 2009! To get started,
please see the You're the Cure information below.
2007
Three families from our group went to Washington, D.C. with the American
Heart Association on April 23 and 24, 2007 for Lobby Day.
Thank you to our two young stroke survivors Alex M. and Michelle B. who
shared their story with members of Congress. Thank you to Lisa A.,
mother of Luc who also shared her son's story. And a special thank
you to Michelle B. for standing up in front of hundreds of people at the
National Survivors Luncheon in DC and letting them know that strokes can
happen at ANY age.
You’re the Cure
You’re the Cure when you speak up for vital
research funding. Or when you advocate for public policies that advance
the fight against heart disease and stroke. That’s why You’re
the Cure, a nationwide network of people dedicated to finding a
cure for heart disease and stroke, needs your talent and time — now!
You don’t have to be a doctor to save lives. Just be
willing to deliver a lifesaving message to public officials whenever you
can. Join the American
Heart Association's You’re the Cure advocacy network.
If you have a child who is a stroke survivor, this is your chance to
share your story. One person can make a difference.
Stroke
Survivors Empowering Each Other (SSEEO)
SSEEO is a community of survivors and the people in
their lives from all across Illinois. In collaboration with the American
Stroke Association, a division of the American Heart Association,
this group is united to support each other, educate the public and bring
about policy change. To learn more about how you can get involved,
please visit their website.
Pediatric
Stroke Video
The Emmy
Award winning Keeping Kids Healthy television show has produced a
very worthwhile video, "Recognizing Strokes in
Children". Click here
to view the video. More detailed information about this particular
show can be found by going to Keeping
Kids Healthy, clicking on the "Show Topics" tab at the
upper right and scrolling down alphabetically to "Strokes".
For a
program on advances in the treatment of stroke in young children, go to "Triumph
of the Spirit 2: Child's Journey Through Paralysis".
Michelle's
Story
Michelle suffered her stroke before she was born, but no cause was ever
found. When she was 8, Michelle felt the
need to write the story of her life, so she sat down at the computer one
day and just started typing. Michelle added to her story over the
course of a few months. She gave permission to the American Heart
Association to share it with others. You can read it here.
ABC 7 Chicago News
Karen Meyer from ABC 7 interviewed three parents from our group for a
segment on childhood stroke. It aired Thursday, September 8, 2005.
The transcript of the segment is available on Karen
Meyer's page on the ABC 7 Chicago website. The purple
childhood stroke awareness wristbands Karen talked about are available
for purchase at www.kidshavestrokes.org.
|
