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Childhood
Stroke & Hemiplegia Connections of Illinois Media Kit
We are continuing with our goal of increasing awareness
about childhood stroke in the community and throughout the State of
Illinois. Our media kit includes press
releases, family
stories, childhood
stroke facts and treatment, and articles
from various news sources.
Three families from our group went to Washington, D.C. with the American
Heart Association on April 23 and 24, 2007 for Lobby Day.
Thank you to our two young stroke survivors Alex M. and Michelle B. who
shared their story with members of Congress. Thank you to Lisa A.,
mother of Luc who also shared her son's story. And a special thank
you to Michelle B. for standing up in front of hundreds of people at the
National Survivors Luncheon in DC and letting them know that stroke can
happen at ANY age.
Stroke
Survivors Empowering Each Other (SSEEO)
SSEEO is a community of survivors and the people in
their lives from all across Illinois. In collaboration with the American
Stroke Association, a division of the American Heart Association,
this group is united to support each other, educate the public and bring
about policy change.
Together,
we educate. We advocate. And we legislate. But we need your voice
too.
Join
us – Join
SSEEO.
Membership
is free, and the benefits are priceless.
When
you join SSEEO, you also become a member of You're the Cure, a
nationwide network (please see below). Many of the families in our
group, CSHC of IL, have already chosen to join SSEEO because this is the
next step in advocating for our children. With our group you will
find support, information and resources to help your child. With
SSEEO, you will be helping to educate the community and making a
difference for all children.
Past
issues of the SSEEO newsletter:
SSEEO
Update Vol. 1 Issue 1 November 2005 Microsoft Word, File Size 555.0
KB
SSEEO
Update Vol. 2 Issue 1 February 2006 Microsoft Word, File Size 480.0
KB
SSEEO
Update Vol. 2 Issue 3 August 2006 Adobe PDF, File Size 292.0 KB
SSEEO
Update, Volume 3, February 2007 Adobe
PDF, File Size 1510.0 KB
SSEEO
Update, Vol. 3 Issue 2 June 2007 Adobe PDF, File Size 514.0 KB
You’re the Cure
You’re the Cure when you speak up for vital
research funding. Or when you advocate for public policies that advance
the fight against heart disease and stroke. That’s why You’re
the Cure, a nationwide network of people dedicated to finding a
cure for heart disease and stroke, needs your talent and time — now!
You don’t have to be a doctor to save lives. Just be
willing to deliver a lifesaving message to public officials whenever you
can. Join the American
Heart Association’s You’re the Cure advocacy network.
If you have a child who is a stroke survivor, this is your chance to
share your story. One person can make a difference.
Pediatric
Stroke Video
The Emmy
Award winning Keeping Kids Healthy television show has produced a
very worthwhile video, "Recognizing Strokes in
Children". Click here
to view the video. More detailed information about this particular
show can be found by going to Keeping
Kids Healthy, clicking on the "Show Topics" tab at the
upper right and scrolling down alphabetically to "Strokes".
For a
program on advances in the treatment of stroke in young children, go to "Triumph
of the Spirit 2: Child's Journey Through Paralysis".
Michelle's
Story
Michelle is 9 years old and she is a stroke survivor.
She suffered her stroke before she was born, but no cause was ever
found. Michelle felt the
need to write the story of her life, so she sat down at the computer one
day and just started typing. Michelle added to her story over the
course of a few months. She gave consent to the American Heart
Association to share it with others. You can read it here.
Can
Kids Have Strokes? Yes!
This is a poster
created by the American Heart Association to promote childhood stroke
awareness.
NBC 5 Chicago
News
Two families from our group were interviewed for the May 10,
2007 news segment on newborn strokes. The video can be viewed here.
ABC 7 Chicago News
Karen Meyer from ABC 7 interviewed three parents from our group for a
segment on childhood stroke. It aired Thursday, September 8, 2005.
The transcript of the segment is available on Karen
Meyer's page on the ABC 7 Chicago website. The purple
childhood stroke awareness wristbands Karen talked about are available
for purchase at www.kidshavestrokes.org.
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